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		<title>SB 5064 - Rare diseases adv. council</title>
		<link>https://wa-law.org/bill/2025-26/sb/5064/</link>
		<description>Updates about SB 5064</description>
		<language>en-US</language>
		<lastBuildDate>Mon, 12 Jan 2026 00:00:00 GMT</lastBuildDate>
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			<title>Prefiled for introduction.</title>
			<description>Prefiled for introduction.</description>
			<pubDate>Mon, 16 Dec 2024 00:00:00 GMT</pubDate>
			<category>official</category>
			<guid isPermaLink="false">2024-12-16/Prefiled for introduction.</guid>
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			<title>First reading, referred to Health &amp; Long-Term Care (Not Officially read and referred until adoption of Introduction report).</title>
			<description>First reading, referred to Health &amp; Long-Term Care (Not Officially read and referred until adoption of Introduction report).</description>
			<pubDate>Mon, 13 Jan 2025 00:00:00 GMT</pubDate>
			<category>official</category>
			<guid isPermaLink="false">2025-01-13/First reading, referred to Health &amp; Long-Term Care (Not Officially read and referred until adoption of Introduction report).</guid>
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			<title>First reading, referred to Health &amp; Long-Term Care.</title>
			<description>First reading, referred to Health &amp; Long-Term Care.</description>
			<pubDate>Mon, 13 Jan 2025 00:00:00 GMT</pubDate>
			<category>official</category>
			<guid isPermaLink="false">2025-01-13/First reading, referred to Health &amp; Long-Term Care.</guid>
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			<title>👍Gail Jarvik - University of Washington Medical Center</title>
			<description>Gail Jarvik signed up to testify Pro. They are signed up to represent University of Washington Medical Center.</description>
			<pubDate>Mon, 20 Jan 2025 20:21:32 GMT</pubDate>
			<category>testifier</category>
			<category>Pro</category>
			<guid isPermaLink="false">testifier/Gail/Jarvik/2025-01-20 20:21:32</guid>
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			<title>👍💵Lindsey Viscarra - National Organization for Rare Disorders</title>
			<description>Lindsey Viscarra signed up to testify Pro. They are signed up to represent &lt;a href="https://wa-law.org/org/national_organization_for_rare_disorders/"&gt;National Organization for Rare Disorders&lt;/a&gt;. They are a registered lobbyist.</description>
			<pubDate>Tue, 21 Jan 2025 14:47:48 GMT</pubDate>
			<category>testifier</category>
			<category>Pro</category>
			<guid isPermaLink="false">testifier/Lindsey/Viscarra/2025-01-21 14:47:48</guid>
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			<title>👍Sarah Tompkins - NW Rare Disease Coalition</title>
			<description>Sarah Tompkins signed up to testify Pro. They are signed up to represent NW Rare Disease Coalition.</description>
			<pubDate>Tue, 21 Jan 2025 14:47:48 GMT</pubDate>
			<category>testifier</category>
			<category>Pro</category>
			<guid isPermaLink="false">testifier/Sarah/Tompkins/2025-01-21 14:47:48</guid>
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			<title>👍Whitney Stohr - Kids Rise Fund</title>
			<description>Whitney Stohr signed up to testify Pro. They are signed up to represent Kids Rise Fund.</description>
			<pubDate>Tue, 21 Jan 2025 14:47:48 GMT</pubDate>
			<category>testifier</category>
			<category>Pro</category>
			<guid isPermaLink="false">testifier/Whitney/Stohr/2025-01-21 14:47:48</guid>
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			<title>❓💵Stephanie Simpson - Bleeding Disorder Foundation of Washington</title>
			<description>Stephanie Simpson signed up to testify Other. They are signed up to represent &lt;a href="https://wa-law.org/org/bleeding_disorder_foundation_of_washington/"&gt;Bleeding Disorder Foundation of Washington&lt;/a&gt;. They are a registered lobbyist.</description>
			<pubDate>Wed, 22 Jan 2025 17:22:18 GMT</pubDate>
			<category>testifier</category>
			<category>Other</category>
			<guid isPermaLink="false">testifier/Stephanie/Simpson/2025-01-22 17:22:18</guid>
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			<title>And refer to Ways &amp; Means.</title>
			<description>And refer to Ways &amp; Means.</description>
			<pubDate>Thu, 30 Jan 2025 00:00:00 GMT</pubDate>
			<category>official</category>
			<guid isPermaLink="false">2025-01-30/And refer to Ways &amp; Means.</guid>
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			<title>HLTC - Majority; 1st substitute bill be substituted, do pass.</title>
			<description>HLTC - Majority; 1st substitute bill be substituted, do pass.</description>
			<pubDate>Thu, 30 Jan 2025 00:00:00 GMT</pubDate>
			<category>official</category>
			<guid isPermaLink="false">2025-01-30/HLTC - Majority; 1st substitute bill be substituted, do pass.</guid>
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			<title>Referred to Ways &amp; Means.</title>
			<description>Referred to Ways &amp; Means.</description>
			<pubDate>Fri, 31 Jan 2025 00:00:00 GMT</pubDate>
			<category>official</category>
			<guid isPermaLink="false">2025-01-31/Referred to Ways &amp; Means.</guid>
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			<title>👍💵Lindsey Viscarra - National Organization for Rare Disorders</title>
			<description>Lindsey Viscarra signed up to testify Pro. They are signed up to represent &lt;a href="https://wa-law.org/org/national_organization_for_rare_disorders/"&gt;National Organization for Rare Disorders&lt;/a&gt;. They are a registered lobbyist.</description>
			<pubDate>Thu, 06 Feb 2025 10:40:49 GMT</pubDate>
			<category>testifier</category>
			<category>Pro</category>
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			<title>👍Mary McDirmid - NW Rare Disease Coalition</title>
			<description>Mary McDirmid signed up to testify Pro. They are signed up to represent NW Rare Disease Coalition.</description>
			<pubDate>Thu, 06 Feb 2025 10:40:49 GMT</pubDate>
			<category>testifier</category>
			<category>Pro</category>
			<guid isPermaLink="false">testifier/Mary/McDirmid/2025-02-06 10:40:49</guid>
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			<title>👍Michelle O'Dell - NW Rare Disease Coalition</title>
			<description>Michelle O'Dell signed up to testify Pro.</description>
			<pubDate>Mon, 10 Feb 2025 09:06:40 GMT</pubDate>
			<category>testifier</category>
			<category>Pro</category>
			<guid isPermaLink="false">testifier/Michelle/O'Dell/2025-02-10 09:06:40</guid>
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		<item>
			<title>By resolution, reintroduced and retained in present status.</title>
			<description>By resolution, reintroduced and retained in present status.</description>
			<pubDate>Mon, 12 Jan 2026 00:00:00 GMT</pubDate>
			<category>official</category>
			<guid isPermaLink="false">2026-01-12/By resolution, reintroduced and retained in present status.</guid>
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