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SB 5064 - Rare diseases adv. council ¶

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Revisions ¶

• Original Bill
• Substitute Bill

Meetings ¶

Mon 02/10 04:00 PM - Ways & Means (WM): SSB 5064 Rare diseases adv. council ¶

84 👍 - Pro ¶

Testifying:

• Lindsey Viscarra - National Organization for Rare Disorders
• Mary McDirmid - NW Rare Disease Coalition
• Michelle O'Dell

6 👎 - Con ¶

0 ❓ - Other ¶

Thu 01/23 08:00 AM - Health & Long Term Care (HLTC): SB 5064 Rare diseases adv. council ¶

37 👍 - Pro ¶

Testifying:

• Gail Jarvik - University of Washington Medical Center
• Lindsey Viscarra - National Organization for Rare Disorders
• Sarah Tompkins - NW Rare Disease Coalition
• Whitney Stohr - Kids Rise Fund

36 👎 - Con ¶

1 ❓ - Other ¶

Testifying:

• 💵Stephanie Simpson - Bleeding Disorder Foundation of Washington

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