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HB 1238 - Rare diseases adv. council ¶

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Revisions ¶

• Original Bill

Meetings ¶

Wed 01/22 01:30 PM - Health Care & Wellness (HCW): HB 1238 Rare diseases adv. council ¶

Sign up to testify:

• I would like to testify in person during the hearing
• I would like to testify remotely
• I would like my position noted for the legislative record
• I would like to submit written testimony

44 👍 - Pro ¶

Testifying:

• Fuki Marie Hisama MD - University of Washington School of Medicine
• Lindsey Viscarra - National Organization for Rare Disorders (NORD)
• Mary McDirmid - NW Rare Disease Coalition
• Sarah Tompkins
• Mary McDirmid - NW Rare Disease Coalition
• Lindsey Topping-Schuetz - NW Rare Disease Coalition
• Lindsay Viscarra - NW Rare Disease Coalition
• Mary McDirmid - NW Rare Disease Coalition
• Whitney Stohr - NW Rare Disease Coalition

28 👎 - Con ¶

Testifying:

• Rozana Knutson

2 ❓ - Other ¶

Testifying:

• 💵Stephanie Simpson - Bleeding Disorder Foundation of Washington

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